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BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million ...
My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.
Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...
In a letter to Senate leadership, the Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in urging Senators to oppose the proposed Senate amendments to H.R. 1 unless changes are ...
I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know — I have experienced it myself and had to accept government assistance to buy food.
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.
Breastfeeding a child comes with a lot of challenges, dedication, and love. Breastfeeding a child with cystic fibrosis brings all of these aspects to a different level. As a first-time mom wanting to ...
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